Like the title says, Grant is doing a 24 hour pH probe test today. It involves them sticking a sensor that looks like a tube down his nose and the other ends connects to a little device that records his reflux for 24 hours.
We got up at 5:30am so we could be at the hospital at 6:30am. The probe was placed at 8:30am. We had his arms put in splints to keep him from pulling at the tube. I later took off the right arm splint.
Other than him being very unhappy, it has been annoying for me too. I have to be very careful to not pull on the tube. I also have to record everytime he eats, coughs, gags, throws up, and lays down. That involves pressing buttons on his recorder and writing them down on a piece of paper. By 4pm I already needed a second piece of paper...
I made the mistake of keeping our other appointments today. That means at 10:30am he had physical therapy and at 2pm he had an occupational therapy evaluation to add additional services to our regular routine.
He cried. And cried. And cried some more. He was not able to calm down no matter how many times I sung, "Baa baa black sheep". It was very rough on all of us.
Tomorrow morning he gets to have the probe removed. Unfortunately he has a gastric emptying study to see if his stomach empties too slowly. I'm pretty sure it does because he is always sloshing around hours after meals.
These tests are because of all of his vomiting. He will also likely need an endoscopy with stomach biopsies when we get back from vacation.
Here is a picture of my unhappy boy:
