Since I last posted things have gotten better. Grant passed his 24 pH probe to check reflux and he passed his gastric emptying study. However, when he had his endoscopy done it painted a different picture. His stomach showed a lot of irritation which indicates reflux. The sphincter at the bottom of the his stomach was closed so tight the doctor could not get the scope through. The doctor dilated the sphincter to get the opening to the correct size.
Since the procedure, he has not been throwing up! It is likely to tighten back up again, but the doctor would rather dilate it again a few more times before resorting to surgery. The surgery is not ideal from what I have heard. I haven't researched it because I have enough on my plate so I've learned to only research what is relevant at the time. Just take things one by one... yah know?
We have had the chance to have an appointment with an orthopedist for Grant. My concerns were about him possibly dislocating his hips at night, the difference in his femur length, and his flexibility. They did an x-ray on his hips and looked him over. The doctor said his right hip socket looked different, but wasn't an issue. He said his femur length wasn't an issue because it was only 1cm. And he gave me a pillow with straps to use at night to keep him from crossing his legs. The pillow hasn't worked for us but I cut the straps off to use them separately. That has really prevented the issue we were having.
A lot more has been going on, but they are all little things:
Our first steps OT left the program.
We are working on getting a wheelchair and a sleep safe bed.
We start private OT next week
Grant has initiated a few steps while I help him stand (yay!!!!)
I decided to start the process on getting a gait trainer.
And Grant likes to headbutt now. See the bruise on his forehead in the picture? Ouch - That's ouch for me, not him. He thinks it is funny... I think it hurts me!!
...and more but I can't remember it all and I can't say the other :)
