Finally some GOOD news!

Grant was approved for genome sequencing!!  It won't be final until we get written confirmation, but I am quite happy with the news!  The test results will take 4 months after his blood is drawn, but at least we are on the right track.  Just because he might have a genetic condition, doesn't mean that is the only issue he is dealing with so, I am also trying to get a second opinion from Akron Children's Hospital regarding his high amino acids.  I was told that it could mean a mitochondrial disorder, but that we couldn't test for it until he was 2 or 3 and had a mature muscle to take a biopsy from.  That seems like a long time to wait, so hopefully the second opinion can give us more options.

The other good news is that my hubby got selected to play golf with a local weatherman.  If he wins, then he will win $500 worth of golf gear.  If he gets a hole in one on the second hole, then he wins a Lexus!  Not that it is going to happen, but it is fun to have the opportunity!

I got to be a juror the other day.  I was selected as the foreperson and I got to hand the verdict to the bailiff.  It was neat to get to do something that most people don't ever get to do.  The gist of the case was that a guy broke into a home through a window, ransacked the entire place, stole jewelry and small electronics, ate a hot pocket, and left his bloody shirt behind.  He then pawned the stolen property the following day.  His only defense was that there was not enough evidence to convict him and that the state didn't eliminate the reasonable doubt.  I'm pretty sure the guy was a public defender because it was a very weak defense.  We found him guilty.

I am going to post again soon with all the progress Grant has made since getting the g-tube.  Honestly, it is pretty remarkable.  My parents even noticed a difference after being gone for 2 weeks!

Here is a recent picture of the family: